- Huang WH, Shih SF, Lin CL, Liu CH. Pregnant women’s attitudes and decision-making regarding prenatal Down syndrome screening and diagnosis: scale development and validation. BMC Pregnancy and Childbirth. 2020;20:407.
- Allyse MA, Michie M. Prenatal genetics in a post-Roe United States. Cell Reports Medicine. 2022;3:100690.
- Irani M, Khadivzadeh T, Asghari Nekah SM, et al. Emotional and cognitive experiences of pregnant women following prenatal diagnosis of fetal anomalies: A qualitative study in Iran. International Journal of Community Based Nursing and Midwifery. 2019;7:22-31.
- Corbijn van Willenswaard K, Lynn F, McNeill J, et al. Music interventions to reduce stress and anxiety in pregnancy: a systematic review and meta-analysis. BMC Psychiatry. 2017;17:271.
- Szekely E, Neumann A, Sallis H, et al. Maternal prenatal mood, pregnancy-specific worries, and early child psychopathology: findings from the DREAM BIG consortium. Journal of the American Academy of Child & Adolescent Psychiatry. 2021;60:186-97.
- Ding XX, Wu YL, Xu SJ, et al. Maternal anxiety during pregnancy and adverse birth outcomes: a systematic review and meta-analysis of prospective cohort studies. Journal of Affective Disorders. 2014;159:103-10.
- Rashid HU, Khan MN, Imtiaz A, et al. Post-traumatic stress disorder and association with low birth weight in displaced population following conflict in Malakand division, Pakistan: a case control study. BMC Pregnancy and Childbirth. 2020;20:166.
- Lagadec N, Steinecker M, Kapassi A, et al. Factors influencing the quality of life of pregnant women: a systematic review. BMC Pregnancy and Childbirth. 2018;18:455.
- Zejnullahu VA, Ukella-Lleshi D, Zejnullahu VA, et al. Prevalence of postpartum depression at the clinic for obstetrics and gynecology in Kosovo teaching hospital: Demographic, obstetric and psychosocial risk factors. European Journal of Obstetrics & Gynecology and Reproductive Biology. 2021;256:215-20.
- Khakbazan Z, Farnam F, Hantoushzadeh S, et al. Reducing the Anxiety and Concern of Pregnant Women during Antenatal Anomaly Screening Tests: A Systematic. International Journal of Women’s Health and Reproduction Sciences. 2022;10:172-9.
- Gitsels-van der Wal JT, Martin L, Manniën J, et al. Antenatal counselling for congenital anomaly tests: Pregnant Muslim Moroccan women׳s preferences. Midwifery. 2015;31:e50-7.
- Agbadjé TT, Menear M, Dugas M, et al. Pregnant women’s views on how to promote the use of a decision aid for Down syndrome prenatal screening: a theory-informed qualitative study. BMC Health Services Research. 2018;18:434.
- Lewis C, Hill M, Chitty LS. Women’s experiences and preferences for Service delivery of non-invasive prenatal testing for aneuploidy in a public health setting: A mixed methods study. PLoS One. 2016;11:e0153147.
- Lou S, Nielsen CP, Hvidman L, et al. Coping with worry while waiting for diagnostic results: a qualitative study of the experiences of pregnant couples following a high-risk prenatal screening result. BMC Pregnancy and Childbirth. 2016;16:321.
- Pop-Tudose Me, Armean P, Pop Vi. Women’s Emotional Profile and the Psychological Stress Associated with Waiting for The Prenatal Diagnostic Testing Results. Acta Medica Transilvanica. 2019;24:4-7.
- Leiva Portocarrero ME, Giguère AMC, Lépine J, et al. Use of a patient decision aid for prenatal screening for Down syndrome: what do pregnant women say? BMC Pregnancy and Childbirth. 2017;17:90.
- Dodampahala S, Wijeratne N. Informed consent for antenatal fetal anomaly scan. Academic Research Journal of Biotechnology. 2014;1:18-22.
- Zahedi F, Tirgar S, Hamidi Abarghoei N, et al. Considering Islamic principles in ethical counseling for mothers of fetuses with congenital anomalies. Iranian Journal of Medical Ethics and History of Medicine. 2015;7:1-16. [In Persian]
- Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today. 2004;24:105-12.
- Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticityin naturalistic evaluation. New Direction for Program Evaluation. 1986;1986:73–84.
- Zahedi R, Nemati-Anaraki L, Sedghi S, Shariat M. Factors Influencing Pregnant Women’s Use of Patient Decision Aids and Decision Making on Prenatal Screening: A Qualitative Study. Journal of Family & Reproductive Health. 2020;14:221-8.
- Kater Kuipers A, De Beaufort ID, Galjaard RJH, Bunnik EM. Rethinking counselling in prenatal screening: an ethical analysis of informed consent in the context of non invasive prenatal testing (NIPT). Bioethics. 2020;34:671-8.
- Couët N, Desroches S, Robitaille H, et al. Assessments of the extent to which health-care providers involve patients in decision making: a systematic review of studies using the OPTION instrument. Health Expectations. 2015;18:542-61.
- Hodgson J, Pitt P, Metcalfe S, et al. Experiences of prenatal diagnosis and decision making about termination of pregnancy: a qualitative study. Australian and New Zealand Journal of Obstetrics and Gynaecology. 2016;56:605-13.
- Harding E, Hammond J, Chitty LS, et al. Couples experiences of receiving uncertain results following prenatal microarray or exome sequencing: a mixed methods systematic review. Prenatal Diagnosis. 2020;40:1028-39.
- Werner-Lin A, Barg FK, Kellom KS, et al. Couple’s narratives of communion and isolation following abnormal prenatal microarray testing results. Qualitative Health Research. 2016;26:1975-87.
- Asplin N. Women’s experiences and reactions when a fetal malformation is detected by ultrasound examination. [Thesis]. Stockholm (Sweden): Karolinska Institutet; 2013.
- Lou S, Frumer M, Schlütter MM, et al. Experiences and expectations in the first trimester of pregnancy: a qualitative study. Health Expectations. 2017;20:1320-9.
- Pilnick A, Zayts O. “It’s just a likelihood”: uncertainty as topic and resource in conveying “positive” results in an antenatal screening clinic. Symbolic Interaction. 2014;37:187-208.
- Ahaddour C. Ethical Issues at the Beginning of Human Life: Towards a Contextualized Islamic Understanding of Prenatal Diagnosis and Termination of Pregnancy. Louvain Studies. 2021;44:319-39.
- Gesser-Edelsburg A, Shahbari NAE. Decision-making on terminating pregnancy for Muslim Arab women pregnant with fetuses with congenital anomalies: maternal affect and doctor-patient communication. Reproductive Health. 2017;14:49.
- Al-Matary A, Ali J. Controversies and considerations regarding the termination of pregnancy for Foetal Anomalies in Islam. BMC Medical Ethics. 2014;15:10.
- Murakami K, Turale S, Skirton H, et al. Experiences regarding maternal age specific risks and prenatal testing of women of advanced maternal age in Japan. Nursing & Health Sciences. 2016;18:8-14.
- Johnson J, Dunning A, Sattar R, et al. Delivering unexpected news via obstetric ultrasound: A systematic review and meta ethnographic synthesis of expectant parent and staff experiences. Sonography. 2020. [Online]. doi: 10.1002/sono.12213
- Pereira MUL, Gonçalves LLM, Loyola CMD, et al. Communication of death and grief support to the women who have lost a newborn child. Revista Paulista de Pediatria. 2018;36:422-7.
- Atienza Carrasco J, Linares Abad M, Padilla Ruiz M, Morales Gil IM. Experiences and outcomes following diagnosis of congenital foetal anomaly and medical termination of pregnancy: A phenomenological study. Journal of Clinical Nursing. 2020;29:1220-37.
- Case DO, Given LM. Looking for information: A survey of research on information seeking, needs, and behavior. 2016.
- Irani M, Khadivzadeh T, Asghari Nekah SM, Ebrahimipour H. Informational needs of pregnant women following the prenatal diagnosis of fetal anomalies: A qualitative study in Iran. Journal of Education and Health Promotion. 2019;8:30.
- Carlsson T, Bergman G, Wadensten B, Mattsson E. Experiences of informational needs and received information following a prenatal diagnosis of congenital heart defect. Prenatal Diagnosis. 2016;36:515-22.
- Grant P, Langlois S, Lynd LD, et al. Out of pocket and private pay in clinical genetic testing: A scoping review. Clinical Genetics. 2021;100:504-21.
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